Financial Toxicity Questionnaire Topics
| Instrument | Abbreviation | Reference |
|---|---|---|
| QOL and Health Status | ||
| Expanded Prostate Cancer Index Composite | EPIC-26 | 1 |
| SF-12 Health Survey (version 2) | 2 | |
| Charlson Co-Morbidity Index | CII | 3 |
| Global Health Status of EORTC | QLQ | 4 |
| Psychological Adjustments to Illness Score | PAIS | 5 |
| Patient Reported Outcomes Measurement Information System | PROMIS | 6, 7 |
| Patient Reported Outcomes Measurement Information System – Global | PROMIS-G | 7 |
| Functional Assessment of Chronic Illness Therapy-General | FACT-G | 8, 9 |
| Hospital Anxiety and Depression Scale | HADS | 4, 8 |
| Edmonton Symptom Assessment System | ESAS | 8 |
| Post-Traumatic Stress Disorder | PTSD | 10 |
| Financial Burden and Stress | ||
| Medical Expenditure Panel Survey | MEPS | 11 |
| Comprehensive Score for Financial Toxicity | COST | 12 |
| Economic Stress | 9 | |
| Financial Toxicity | 12 | |
| Overall Stress and Health Care System Satisfaction | ||
| Distress Thermometer | 7, 13 | |
| Service Satisfaction Scale for Cancer Care for Patients | SCA | 14 |
| Strain Index | 15 | |
| Patient Satisfaction Questionnaire Short Form | PSQ-18 | 12 |
| Caregiver | ||
| Charlson Co-Morbidity Index | CII | 3 |
| Expanded Prostate Cancer Index Composite-Partner | EPIC-Partner | 14 |
| Caregiver Quality of Life Scale – Cancer | 16, 17 | |
| Caregiver Burden | 17 | |
| Caregiver Self-Assessment Questionnaire | 7 | |
| Caregiver Reaction Assessment Scale | 18 | |
| Caregiver Depression | 17 | |
| Post-Traumatic Stress Disorder | PTSD | 10 |
| Positive Aspects of Caregiving | 5 |
References
- Miller DC, Sanda MG, Dunn RL, Montie JE, Pimentel H, Sandler HM, McLaughlin WP, Wei JT. Long-term outcomes among localized prostate cancer survivors: health-related quality-of-life changes after radical prostatectomy, external radiation, and brachytherapy. J Clin Oncol 2005;23(12):2772-80. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15837992
- Ware J, Kosinski M, Turner-Bowker D, Gandek B. How to score version 2 of the SF-12 health survey (with a supplement documenting version 1). Lincoln, RI: QualityMetric Incorporated; 2002.
- Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis 1987;40(5):373-83. http://www.ncbi.nlm.nih.gov/pubmed/3558716
- Ferrandina G, Petrillo M, Mantegna G, Fuoco G, Terzano S, Venditti L, Marcellusi A, De Vincenzo R, Scambia G. Evaluation of quality of life and emotional distress in endometrial cancer patients: a 2-year prospective, longitudinal study. Gynecol Oncol 2014;133(3):518-25. http://www.ncbi.nlm.nih.gov/pubmed/24637198
- Wagner CD, Tanmoy Das L, Bigatti SM, Storniolo AM. Characterizing burden, caregiving benefits, and psychological distress of husbands of breast cancer patients during treatment and beyond. Cancer Nurs 2011;34(4):E21-30. http://www.ncbi.nlm.nih.gov/pubmed/21242772
- Ferrandina G, Petrillo M, Mantegna G, Fuoco G, Terzano S, Venditti L, Marcellusi A, De Vincenzo R, Scambia G. Evaluation of quality of life and emotional distress in endometrial cancer patients: a 2-year prospective, longitudinal study. Gynecol Oncol 2014;133(3):518-25. http://www.ncbi.nlm.nih.gov/pubmed/24637198
- American Cancer Society: Cancer Facts and Figures for African Americans 2009-2010. http://www.cancer.org/research/cancerfactsstatistics/cancer-facts-figures-for-african-americans.
- Delgado-Guay M, Ferrer J, Rieber AG, Rhondali W, Tayjasanant S, Ochoa J, Cantu H, Chisholm G, Williams J, Frisbee-Hume S, Bruera E. Financial Distress and Its Associations With Physical and Emotional Symptoms and Quality of Life Among Advanced Cancer Patients. Oncologist 2015;20(9):1092-8. 4571810. http://www.ncbi.nlm.nih.gov/pubmed/26205738
- Ell K, Xie B, Wells A, Nedjat-Haiem F, Lee PJ, Vourlekis B. Economic stress among low-income women with cancer: effects on quality of life. Cancer 2008;112(3):616-25. ttp://www.ncbi.nlm.nih.gov/pubmed/18085642
- Teixeira RJ, Pereira MG. Psychological morbidity, burden, and the mediating effect of social support in adult children caregivers of oncological patients undergoing chemotherapy. Psychooncology 2013;22(7):1587-93. http://www.ncbi.nlm.nih.gov/pubmed/22972765
- Agency for Health Care Research and Quality (AHRQ): Sample Design of 1997 Medical Expenditure Panel Survey Household Component. In http://meps.ahrq.gov/mepsweb/data_files/publications/mr11/mr11.pdf; 2000.
- de Souza JA, Yap BJ, Hlubocky FJ, Wroblewski K, Ratain MJ, Cella D, Daugherty CK. The development of a financial toxicity patient-reported outcome in cancer: The COST measure. Cancer 2014;120(20):3245-53. http://www.ncbi.nlm.nih.gov/pubmed/24954526
- Madden J. The problem of distress in patients with cancer: more effective assessment. Clin J Oncol Nurs 2006;10(5):615-9. http://www.ncbi.nlm.nih.gov/pubmed/17063615
- Sanda MG, Dunn RL, Michalski J, Sandler HM, Northouse L, Hembroff L, Lin X, Greenfield TK, Litwin MS, Saigal CS, Mahadevan A, Klein E, Kibel A, Pisters LL, Kuban D, Kaplan I, Wood D, Ciezki J, Shah N, Wei JT. Quality of life and satisfaction with outcome among prostate-cancer survivors. N Engl J Med 2008;358(12):1250-61. ttp://www.ncbi.nlm.nih.gov/pubmed/18354103
- Townsend AL, Ishler KJ, Shapiro BM, Pitorak EF, Matthews CR. Levels, types, and predictors of family caregiver strain during hospice home care for an older adult. J Soc Work End Life Palliat Care 2010;6(1-2):51-72. http://www.ncbi.nlm.nih.gov/pubmed/20544477
- Dionne-Odom JN, Azuero A, Lyons KD, Hull JG, Tosteson T, Li Z, Li Z, Frost J, Dragnev KH, Akyar I, Hegel MT, Bakitas MA. Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients With Advanced Cancer: Outcomes From the ENABLE III Randomized Controlled Trial. J Clin Oncol 2015;33(13):1446-52. 4404423. http://www.ncbi.nlm.nih.gov/pubmed/25800762
- Weitzner MA, Jacobsen PB, Wagner H, Jr., Friedland J, Cox C. The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res 1999;8(1-2):55-63. http://www.ncbi.nlm.nih.gov/pubmed/10457738
- Bachner YG, O'Rourke N, Carmel S. Psychometric properties of a modified version of the Caregiver Reaction Assessment Scale measuring caregiving and post-caregiving reactions of caregivers of cancer patients. J Palliat Care 2007;23(2):80-6. http://www.ncbi.nlm.nih.gov/pubmed/17853843
