Financial Toxicity Questionnaire Topics

Instrument Abbreviation Reference
QOL and Health Status    
Expanded Prostate Cancer Index Composite EPIC-26 1
SF-12 Health Survey (version 2)   2
Charlson Co-Morbidity Index CII 3
Global Health Status of EORTC QLQ 4
Psychological Adjustments to Illness Score PAIS 5
Patient Reported Outcomes Measurement Information System PROMIS 6, 7
Patient Reported Outcomes Measurement Information System – Global PROMIS-G 7
Functional Assessment of Chronic Illness Therapy-General FACT-G 8, 9
Hospital Anxiety and Depression Scale HADS 4, 8
Edmonton Symptom Assessment System ESAS 8
Post-Traumatic Stress Disorder PTSD 10
Financial Burden and Stress    
Medical Expenditure Panel Survey MEPS 11
Comprehensive Score for Financial Toxicity COST 12
Economic Stress   9
Financial Toxicity   12
Overall Stress and Health Care System Satisfaction    
Distress Thermometer   7, 13
Service Satisfaction Scale for Cancer Care for Patients SCA 14
Strain Index   15
Patient Satisfaction Questionnaire Short Form PSQ-18 12
Caregiver    
Charlson Co-Morbidity Index CII 3
Expanded Prostate Cancer Index Composite-Partner EPIC-Partner 14
Caregiver Quality of Life Scale – Cancer   16, 17
Caregiver Burden   17
Caregiver Self-Assessment Questionnaire   7
Caregiver Reaction Assessment Scale   18
Caregiver Depression   17
Post-Traumatic Stress Disorder PTSD 10
Positive Aspects of Caregiving   5

References

  1. Miller DC, Sanda MG, Dunn RL, Montie JE, Pimentel H, Sandler HM, McLaughlin WP, Wei JT. Long-term outcomes among localized prostate cancer survivors: health-related quality-of-life changes after radical prostatectomy, external radiation, and brachytherapy. J Clin Oncol 2005;23(12):2772-80. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15837992
  2. Ware J, Kosinski M, Turner-Bowker D, Gandek B. How to score version 2 of the SF-12 health survey (with a supplement documenting version 1). Lincoln, RI: QualityMetric Incorporated; 2002.
  3. Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis 1987;40(5):373-83. http://www.ncbi.nlm.nih.gov/pubmed/3558716
  4. Ferrandina G, Petrillo M, Mantegna G, Fuoco G, Terzano S, Venditti L, Marcellusi A, De Vincenzo R, Scambia G. Evaluation of quality of life and emotional distress in endometrial cancer patients: a 2-year prospective, longitudinal study. Gynecol Oncol 2014;133(3):518-25. http://www.ncbi.nlm.nih.gov/pubmed/24637198
  5. Wagner CD, Tanmoy Das L, Bigatti SM, Storniolo AM. Characterizing burden, caregiving benefits, and psychological distress of husbands of breast cancer patients during treatment and beyond. Cancer Nurs 2011;34(4):E21-30. http://www.ncbi.nlm.nih.gov/pubmed/21242772
  6. Ferrandina G, Petrillo M, Mantegna G, Fuoco G, Terzano S, Venditti L, Marcellusi A, De Vincenzo R, Scambia G. Evaluation of quality of life and emotional distress in endometrial cancer patients: a 2-year prospective, longitudinal study. Gynecol Oncol 2014;133(3):518-25. http://www.ncbi.nlm.nih.gov/pubmed/24637198
  7. American Cancer Society: Cancer Facts and Figures for African Americans 2009-2010. http://www.cancer.org/research/cancerfactsstatistics/cancer-facts-figures-for-african-americans.
  8. Delgado-Guay M, Ferrer J, Rieber AG, Rhondali W, Tayjasanant S, Ochoa J, Cantu H, Chisholm G, Williams J, Frisbee-Hume S, Bruera E. Financial Distress and Its Associations With Physical and Emotional Symptoms and Quality of Life Among Advanced Cancer Patients. Oncologist 2015;20(9):1092-8. 4571810. http://www.ncbi.nlm.nih.gov/pubmed/26205738
  9. Ell K, Xie B, Wells A, Nedjat-Haiem F, Lee PJ, Vourlekis B. Economic stress among low-income women with cancer: effects on quality of life. Cancer 2008;112(3):616-25. ttp://www.ncbi.nlm.nih.gov/pubmed/18085642
  10. Teixeira RJ, Pereira MG. Psychological morbidity, burden, and the mediating effect of social support in adult children caregivers of oncological patients undergoing chemotherapy. Psychooncology 2013;22(7):1587-93. http://www.ncbi.nlm.nih.gov/pubmed/22972765
  11. Agency for Health Care Research and Quality (AHRQ): Sample Design of 1997 Medical Expenditure Panel Survey Household Component. In http://meps.ahrq.gov/mepsweb/data_files/publications/mr11/mr11.pdf; 2000.
  12. de Souza JA, Yap BJ, Hlubocky FJ, Wroblewski K, Ratain MJ, Cella D, Daugherty CK. The development of a financial toxicity patient-reported outcome in cancer: The COST measure. Cancer 2014;120(20):3245-53. http://www.ncbi.nlm.nih.gov/pubmed/24954526
  13. Madden J. The problem of distress in patients with cancer: more effective assessment. Clin J Oncol Nurs 2006;10(5):615-9. http://www.ncbi.nlm.nih.gov/pubmed/17063615
  14. Sanda MG, Dunn RL, Michalski J, Sandler HM, Northouse L, Hembroff L, Lin X, Greenfield TK, Litwin MS, Saigal CS, Mahadevan A, Klein E, Kibel A, Pisters LL, Kuban D, Kaplan I, Wood D, Ciezki J, Shah N, Wei JT. Quality of life and satisfaction with outcome among prostate-cancer survivors. N Engl J Med 2008;358(12):1250-61. ttp://www.ncbi.nlm.nih.gov/pubmed/18354103
  15. Townsend AL, Ishler KJ, Shapiro BM, Pitorak EF, Matthews CR. Levels, types, and predictors of family caregiver strain during hospice home care for an older adult. J Soc Work End Life Palliat Care 2010;6(1-2):51-72. http://www.ncbi.nlm.nih.gov/pubmed/20544477
  16. Dionne-Odom JN, Azuero A, Lyons KD, Hull JG, Tosteson T, Li Z, Li Z, Frost J, Dragnev KH, Akyar I, Hegel MT, Bakitas MA. Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients With Advanced Cancer: Outcomes From the ENABLE III Randomized Controlled Trial. J Clin Oncol 2015;33(13):1446-52. 4404423. http://www.ncbi.nlm.nih.gov/pubmed/25800762
  17. Weitzner MA, Jacobsen PB, Wagner H, Jr., Friedland J, Cox C. The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res 1999;8(1-2):55-63. http://www.ncbi.nlm.nih.gov/pubmed/10457738
  18. Bachner YG, O'Rourke N, Carmel S. Psychometric properties of a modified version of the Caregiver Reaction Assessment Scale measuring caregiving and post-caregiving reactions of caregivers of cancer patients. J Palliat Care 2007;23(2):80-6. http://www.ncbi.nlm.nih.gov/pubmed/17853843